Debra Miceli H Madusa
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Make a donation and help fund research for a cure. La pagina de internet de debra provee pacientes, cuidadores y profesionales de salud con la información mas reciente sobre eb, mientras ofrece un lugar donde la comunidad de eb puede unirse sobre la linea. Learn about epidermolysis bullosa (eb), a rare genetic disorder, its symptoms, treatments, and personal stories from the eb community at debra of america.
Debrah Miceli Madusa
Founded in 1980, debra of america is dedicated to improving the quality of life of all people impacted by epidermolysis bullosa (eb) in the u.s For more information or if you have any questions, feel free to contact us at Learn more about our work.
Get to know the dedicated team behind debra of america, working tirelessly to support individuals and families affected by epidermolysis bullosa (eb).
Explore our mentorship programs, eb nurse educator program, new family advocate program, debra care conference & additional support services. Debra of america is part of debra international, a worldwide network of national groups working on behalf of all people living with epidermolysis bullosa (eb). When there seems to be no way out, there's debra of america, a lifeline for thousands of families living with “the worst disease you’ve never heard of,” epidermolysis bullosa (eb). Learn about debra of america's team working to raise eb awareness, and provide eb support to patients and families affected by epidermolysis bullosa (eb).
